What to Expect

• Ask your child’s primary care provider to fax us records about your child’s overall health and growth. Our fax number is 206-985-3121.
• Provide any test results related to your child’s condition, including CT (computed tomography) scans and X-rays. Bring copies from your child’s doctor or ask the doctor to fax them. This avoids repeating tests.

Learn more about what to do before your appointment.

• At the first visit, a craniofacial pediatrician will examine your child. Because of our team’s experience, often a careful exam is all that is needed to make the diagnosis.
• The doctor will explain your child’s diagnosis and plan their overall care. If your child is old enough to understand, the doctor will make sure to talk to your child about what is going to happen next.
• At most visits, your child will be weighed and measured.
• A medical photographer will ask to take photos for your child’s medical record. This helps show how your child changes with time and after surgeries.
• You will visit with your craniofacial nurse to start learning about your child’s care. The nurse also coordinates appointments.
• You will meet with a social worker, who helps your family deal with the challenges of your child’s condition. The social worker connects you to support services and helps plan for a hospital stay.
• You may meet with a surgeon during your first visit, if information from your family doctor has let us know your child’s diagnosis.
• Your child may see other specialists during their visit, depending on their age and needs. Learn more about the Craniofacial Center team.
• To confirm the diagnosis for some children, we may recommend testing their blood or spit to look for changes in genes. Learn more about our Craniofacial Genetics Clinic.
• During your visit we try to answer all of your questions. Please ask if anything is not clear.
• Each provider who sees your child will record a clinic note that will be part of your child’s chart. We will send a copy to your primary care provider.

• We schedule your child’s appointments so they can see as many specialists in 1 day as possible.
• Most children have 3 appointments, but your child may have only 1 or as many as 7. Our goal is to provide personal, coordinated care from the specialists your child needs.
• You will have some waiting time throughout the day. You may want to bring a snack or visit the nearby hospital cafeteria.

• Test results related to your child’s condition, if your primary care provider has not sent them already. This includes CT scans and X-rays.
• Photos of your child’s head if it has an unusual shape, so we can see how your child’s head shape has changed over time. It also helps to see photos of any other family members with a head shape similar to your child’s.
• Medicines or a list of them. Include nonprescription items like vitamins. Include the name, dose and instructions.
• Forms you need to have signed by our providers. For example, any school forms.
• Snacks for your child in case the appointment lasts longer than expected.

We will make sure you leave the appointment with detailed instructions about what will happen next.

You can reach our nurses between clinic visits at 206-987-1117.

Once we have information from all the providers who saw your child at their first visit, we will contact you to make the next appointment.

To schedule a yearly check-up, call 206-987-2208, option 1, or email craniovisits@seattlechildrens.org.

We will call you with test results. If you are a MySeattleChildrens member, you can check online for some of your results.

• If you won’t be able to attend an appointment, please let us know as soon as possible. That way we can offer the appointment to another child.
• Call 206-987-2208.

Knowing what to expect can help your child be less afraid of a clinic visit.

We have tips for preparing your child for a clinic visit.

Get maps and directions to Seattle Children’s hospital campus.

Arrive 15 minutes before your appointment to allow time for registration.

For more information on visiting Seattle Children’s clinics, please see Your Child’s Clinic Visit.

Questions? Call 206-987-1117.